Helping make the health care system work for you

When is it OK to record your doctor's orders?

cell phone audio recording

Erika Aguilar/KPCC

Jonathan Sommers didn't use his cell phone to record the moment when his doctor diagnosed him with testicular cancer in 2012.

He was 28 years old and had so many questions, but was too confused to process anything the doctor had just told him. He remembers going home after that first appointment and feeling overwhelmed.

After that, he recorded virtually every other significant appointment.

He says he would ask his doctor if it was OK to record their conversation that day, especially when it pertained to "new news, or treatment options, or different therapies that we wanted to discuss."

He was also sure to record when he was asking the doctor specific questions.

"That was really the most important part for me was when there were questions that I wanted the answer to," says Sommers, who's now 32 and cured of the cancer. "I would record it because a lot of the times, when you hear the answer, you need to let it marinate in your brain for a bit."


Bill watch: 2 bills aim to limit out-of-pocket costs

Pink Piggy Bank On Top Of A Pile Of One Dollar Bills

kenteegardin via Flickr Creative Commons

Feel free to use this image, just link to www.SeniorLiving.Org

There are a lot of reasons that people get hit with daunting medical bills. But here are two I hear frequently:

  • #SurpriseBills: People are being charged the out-of-network rate to see doctors they thought were in their insurance network.
  • People who are covered under a family plan have to reach a family deductible – instead of an individual deductible – before their insurance coverage kicks in.

Two bills moving through Sacramento are trying to address both of these situations. The bills passed the Assembly and are awaiting votes on the Senate floor. If they pass the Senate, they'll return to the Assembly for final votes on any amendments. All of this must occur before Sept. 11.

Consumer advocates say these bills are urgently needed. Anthony Wright, executive director of Health Access California, says they will protect people from unexpected out-of-pocket costs, which have the ability to destabilize a family's finances.


Discussing cost could prevent a cancer side effect: Bankruptcy

Courtesy of Lee Tomlinson

Lee Tomlinson was diagnosed with throat cancer three years ago. He's since launched the non-profit Center for More Compassionate Care, where he speaks to medical professionals about the importance of caring for patients' spiritual and emotional needs, as well as their physical ones.

Rebecca Plevin/KPCC

Lee Tomlinson at the wheel in his role as an Uber driver.

When 66-year-old Lee Tomlinson of Westwood was diagnosed with Stage 3 throat cancer three years ago, he says he had one thing on his mind.

"All I cared about was fighting for my life," Tomlinson says. "Nothing else mattered at those moments."

But in hindsight, he says, there was something else he should have considered: The cost of his treatment. 

"You wouldn't walk in and buy a car and have no idea what it costs," Tomlinson explains. "But nobody brought it up."

"We knew we had some insurance, but we didn't know the length, and breadth, we didn't even know what the full treatment was about …  it's a massive amount of information."

High drug costs 'only getting worse'

In reality, doctors don't know exactly how much a drug will cost a particular patient.

But they do know this: The cost of cancer drugs is skyrocketing. Last year, all of the new cancer drugs approved by the FDA were priced above $120,000 per year of use.


FAQ: Why are cancer drugs getting more expensive?

kbrookes via Flickr Creative Commons

One patient's chemotherapy IV drips.

For several weeks, I've been working on a story about how patients navigate the high cost of cancer drugs. But before I finish that story, I want to take a step back and ask another question: Why are cancer drugs so expensive anyway?

How quickly have drug prices been rising?

In short: Prices have been rising really quickly.

The average price of new cancer drugs increased five- to 10-fold over 15 years, to more than $100,00 per year in 2012, according to a recent article in the journal Mayo Clinic Proceedings.

In 2014, all new cancer drugs approved by the FDA were priced above $120,000 per year of use.

How can drug prices rise this fast?

Dr. Vincent Rajkumar offers at least four reasons for why cancer drug prices have been increasing. He's a professor of medicine at the Mayo Clinic in Minnesota, and one of 118 cancer specialists who co-wrote the Mayo Clinic Proceedings article on the high cost of cancer drugs.


#PriceCheck: Yes, you can give birth for $250

Daniel via Flickr Creative Commons

About a month ago, we asked you to share what you paid for childbirth. Many of you shared your costs with our #PriceCheck project.

I've been combing through the data and something jumped out at me: While there's a wide variation in the bills that new parents paid, several of you paid very little for your labor and delivery.

Two moms I spoke with paid just $250 for their entire birth. That cost was written into their plan, so they knew what their bill would be before they ever got pregnant.

What's the secret, you ask? No, they're not giving birth in bargain basement hospitals. Rather, they get their health insurance through an HMO, a health maintenance organization. And setting a fixed price for childbirth is standard practice among HMOs. 


I've only had insurance coverage through a Preferred Provider Organization, or PPO, so these relatively low bills surprised me. But they didn't surprise Gerald Kominski, director of the UCLA Center for Health Policy Research.