California ranked in the top 10 in an AARP scorecard ranking states on long-term care services and support — but before you applaud, keep in mind that the system was already behind the curve.
The AARP scorecard assessed states on several factors, including affordability and access, choice, quality and support for family caregivers.
“It’s looking at a fairly broken and ineffective long care system in the nation," said Blanca Castro, the California advocacy manager for AARP. "So we are ranked ninth, putting that into prospective — we have a long way to go.”
California did well because of its unique system of in-home support services, though Castro said they need to be more affordable for middle-income families.
Areas of improvement include quality at nursing homes and in managing transitions between home and the hospital to avoid going back and forth.
Long-term care has been getting more attention as the baby boom generation chooses to age in place. The study found that this generation has fewer family members to take care of them and often must rely on programs and outside help.
— Elizabeth Aguilera/KPCC
Previously: How your state rates in terms of long-term care
In just 12 years, the oldest members of the huge baby-boom generation will turn 80. Many will need some kind of long-term care. A new study from AARP says that care could vary dramatically in cost and quality depending on where they live.
The study was motivated by a simple fact: The number of available family caregivers is declining. In 2010, there were potentially seven for each person 80 years old or older. By the time baby boomers reach that age, there will be only four potential caregivers for each of them. And those numbers are expected to continue declining. Chalk it up to longer lives and smaller families.
The study looked at 26 different variables in each state, from affordability and access to whether care is delivered in private homes or more expensive nursing homes. Reinhard says states that encouraged more care at home got higher marks. "It's a philosophy, it's a value that states have and they work hard to make that happen," she says.
AARP calls its study a scorecard. So, if you're keeping score, the state with the highest marks was Minnesota, followed by Washington, Oregon, Colorado and Alaska. Bringing up the rear were Indiana, Tennessee, Mississippi and Alabama, with Kentucky coming in last.
Nevertheless, Reinhard says that all the states improved in some ways from the previous study in 2011. For example, it's become increasingly common for family members to perform some medical tasks like giving injections or treating wounds. But in the past couple of years, 13 states have also allowed nurses to train paid caregivers to perform such tasks in the home. That means that "the family caregiver doesn't have to run home from work and do it," says Reinhard.
While the states are the generators of public policy related to long-term care, there's also a role for the federal government, says Dr. Bruce Chernof. He's CEO of the SCAN Foundation, one of the co-sponsors of the study, and was also recently chair of the Federal Commission on Long-Term Care.
It would be good to have national standards for training home care workers, Chernof says. "We can help make sure that that training is good and adequate. In California, for example, you need more training to be a cosmetologist to cut hair than you need to be a home care worker."
The costs of care — whether at home or in a nursing home — varied widely across the states. But there wasn't one where care was affordable for most middle-class families. The study found that home care services on average would consume 84 percent of the income of a typical older middle-income family. For nursing home care, it was 246 percent of income.
That's why the study gave high grades to states that had adopted measures to improve the circumstances of family caregivers. Because with the high costs of long-term care, older adults will continue to rely on family caregivers, even as their numbers dwindle.
— Ina Jaffe/NPR
This story has been updated.