African-Americans suffer from Alzheimer’s disease and other forms of dementia at two to three times the rate of non-Hispanic whites, but at the same time - they are less likely to take part in research.
That's created a challenge for researchers hoping to get a better understanding how the disease affects this population.
We spoke to Anna Gorman, a a reporter for Kaiser Health News. We started our conversation by talking about two people she profiled, Levi and Dorothy Reeves, an African American couple dealing with dementia.
Levi suffers from a form of dementia called Lewy Body Dementia. Dorothy has been taking care of him for years, dressing and feeding him, but although she has not had a negative experience with a doctor, she was initially hesitant to donate Levi's brain to researchers so they could study the effects of the disease.
And that speaks to a bigger problem with understanding African Americans and Alzheimers and Demetia.
(click on the blue arrow to hear the entire interview)